I emailed RNL bio and also talked to others who have contacted this stem cell center that treated Chloe in 2009. Chloe still has nearly normal hearing in both ears a year later. The anti stem cell guys who insisted her improvement was only temporary are wrong. The antis have been proven wrong on every account and will continue to be proven wrong! Her improvement is permanent and her tinnitus is also gone!
This boy is 10 years old and was born hoh or deaf and after only one month, his hearing significantly improved! He will continue improving for a few more months and might not even need HAs anymore! RNL bio is also treating another boy(results soon!) born hoh or deaf and they are treating two adults with hearing loss and tinnitus. Me and my friends have asked for more information and before/after audiograms. Ill let you know his db loss and how many db improvement he achieved.
Some facts I have learned:
1. There's one decibal improvement in hearing per 10 million stem cells. You get 600m stem cells from RNL bio, yielding an average of 60db improvement! The early pioneers usually only got a few db improvement because they did not get enough stem cells. Chloe's amazing success certainly was helped by her getting 600m stem cells. I was informed by RNL bio that no one got a direct injection, not even Chloe.
2. Those researchers successfully restored hearing in 80% of the rats. I wouldn't be surprised if the other 20% attained some improvement but fell short of a full restoration. They mention human trials being 5-10 years away, but we know America is this far behind other countries due to the Bush ban and because so many people are anti stem cells.
3. I will share all the information I can get. Save both of your ears for stem cells which is superior to cochlear implants. There will be lots of regret by many CI wearers who wished they had waited just a bit longer. Fortunately, most aren't bilateral(two CIs) and stem cells can easily outperform CI if they get better than 80db HL. They then will enjoy excellent hearing with a properly fitted and programmed HA in their stem cell ear.
4. I also learned that if 600m stem cells fails to give you much of an improvement, RNL bio honestly does not recommend additional stem cells and to save your money. The cause for poor results would not be due to stem cells, but some other factor(such as defective genes) preventing stem cells from working fully. Should stem cells fail to give me much of an improvement, there's a genetic solution which ill get the chance to try in 5-10 years.
5. I will wait out 2010, but will look into getting 600m stem cells($30k cost) as early as spring of 2011 should stem cells be an amazing success for the other pioneers that RNL bio is treating this year and I see before/after audiograms. No stem cells will be injected directly into the ear as it's too risky. Even Chloe didn't get direct injection, all 600 million autologous stem cells was administered by IV.
6. A quick Google search shows plenty of proof that adult stem cells are safe and work while embryonic stem cells do nothing but cause tumors/cancer. Don Margolis has a great blog on stem cells with dozens of testimonials and facts. He even explains that many Americans are anti stem cells and believe the politician's and media's lies. They don't want to do their own research and learn the facts and truth.
7. A Google search using keywords such as "peer reviewed study stem cells" reveals hundreds of articles. Study demonstrates safety of cord blood stem cell transplantation protocol to treat neurological conditions. Another study in University of Pennsylvania School of Medicine proves that stem cells works for type 1 diabetes. This study conducted by Dr. Richard Burt shows adult stem cells could be used to treat MS.
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Keeping toes, fingers crossed and really praying hard that Prisha too could get help and get her ears fixed too.I too am saving her loss of 110db in left and 75 db in right for that big day.Hooked to ur blog and hoping that the big day arises for the entire deaf community.Once proven with long term results I am waiting for it.Keep mailing in!
ReplyDeleteThanks for the great post,
ReplyDeleteThe $30k price you mentioned in your last point, presumably, that's just for one ear?
Looking forward to your posts if you do go through with the op next year. You are certainly braver than I - even though I'd love to get a 80db increase, I'm not sure I have the balls to be an early adopter of the technique.
Do you have any other links to blogs/sites that talk about this research or publish results?
For prelingually deaf kids, CIs might still be a better bet so that they get early access to sound and don't develop a language gap. (Even with early ASL, there's still often a language gap.) Also, lots of us have Connexin-26 deafness, which won't be treated just with stem cells; that will need some sort of gene therapy in conjunction with the stem cells, and that therapy is even further off in the future. So there are still good reasons to consider CIs. But like you, I'm very excited about the stem cell research (and disgusted with opposition), and I hope you benefit from it!
ReplyDeleteDeafdude PLEASE email me at lissa.waring@yahoo.co.uk
ReplyDeleteThanks for such an insightful post. I look forward to hearing of further updates regarding exciting stem cell research such as this. Hopefully, it will become viable for 80db loss, hearing aids dependent folks such as me.
ReplyDeleteHow come you don't have a link to a single news or medical journal showing ANY of the stuff you claim works in humans? Where is the story about the boy coming from?
ReplyDeleteJust some potential objections:
ReplyDelete1). Some who acknowledge that Chloe was healed by stem cells say this was only possible due to her hearing loss being A). recent and B). autoimmune.
Is there an example of someone being cured of hearing loss that wasn't caused by an autoimmune disorder? Is there an example of someone who was deafened either by noise or chemical exposure years ago having their hearing restored by stem cell therapy?
When stereocilia in the inner ear are badly damaged by noise or toxins they degrade over time, and I don't know if stem cells could reverse the damage of long destroyed cells the same way they could for cells that were damaged last week.
2). Some claim that Chloe's treatment with stem cells was only incidental to her getting her hearing back, they claim it was a temporary loss that basically went away on its own, as it sometimes does (although rarely).
3). How will hearing restoration work in people who were born deaf or who have been basically deaf for years? Will their brain be able to process that new data that their newly "fixed" ears are feeding it? Even if stem cells restore hearing, how would someone who was born deaf deal with all sorts of new sensory data that they've never experienced before?
As an example, I've done some research into genetics in school, and we've learned it may be possible to use gene therapy to give human eyes more color sensitivity (to be able to see UV and different shades of colors other than red, blue, and green) but that the (adult) human brain may not know what to do with this excess information, and may just lump it into other, well-known colors that it's used to processing.
I wonder how much a lifelong deaf or very HOH person would have to "learn" to hear even if stem cells fixed their hearing to 10 dB overnight.
Not trying to put down stem cells, just putting some questions out there.
great to hear the news about RIO BNL, I'm looking forward to learning more about the results of this boy and his hearing. I'm looking into undergoing this treatment soon also. My concern right now, is how do stem cells work when administered through IV, ie. how do the cells know to heal the ears and not go to other parts of the body? What are your throughts/findings on this?
ReplyDeleterouchi, thanks for your kind words. Find out Prisha's unaided and aided audiograms so you can ensure her HAs are giving her maximum amplification.
ReplyDeleteSteve, $30k gets you 600m stem cells by IV. This treats both ears, provided you saved them and don't have any CIs. I have nothing to lose with stem cells except my money if it doesn't work. Check out the other posts in my blog for more stem cell facts and figures.
Julia, ill always choose HA over CI and save the residual hearing for stem cells. CI is a last resort for those with no residual hearing and only if stem cells and HAs don't work at all. I explained why im still getting stem cells even if I had cx26 because my hearing may improve 30-40db which would easily match how well those with CIs hear.
Anonymous #1, I suggest you read my blog and learn. Stem cells does work in humans as ive explained.
Anonymous #2, Pay no attention to the anti stem cell loons. Read all the posts in my blog and youll understand why I believe stem cells will work for the majority of people, including me. If CI works for pre-lingual deaf, stem cells will work way better. Just as the human brain can learn to hear new sounds with better HAs, CI and stem cells, humans too will learn to see new colors when they get the colorblind cure or an elective process to become tetrachromatic.
Anonymous #3, what is your hearing loss like, got any audiograms? Stem cells travel thruout the body and some make their way into your inner ear/cochlea.
The problem is that, once again, you offer no proof to back up what you say. Just claiming you've talked to someone who says people have been treated successfully does not qualify as proof. You seem unable to grasp this point. I could visit your blog and write: "I have talked to people who tell me stem cells are ineffective! Now all those stem cell advocates have been proved wrong!" Would you believe that? But it's on the same level as your posts.
ReplyDeleteAs for RIO BNL, I'm just wondering why taking a few cells from your body, cultivating them and then injecting them back into your blood stream should cost 30 grand (!!). Don't you see that you're easy prey to shysters?
I've got sudden sensorineural hearing loss in one ear. Profound hearing loss. My audiograms shows hearing at 70dB, I think. I basically don't hear anything in that ear and HAs don't work for me. Because this is all new to me, I'm a little hesitant after reading about potential cancer risks after stem cell therapy. Have you come across any of this in your research? When all those stem cells are put into your body and only some make it to the inner ear, what do the rest of the stem cells do for your body? I'd love to believe all I would lose if it didn't work would be $30K, but I want to be more certain. I would love to hear again in stereo.
ReplyDeleteThe Potential of Stem Cells for
ReplyDeletethe Treatment of Deafness
Marcelo N Rivolta,
MD, PhD,
source: http://www.pinpointmedical.com/uploads/pdfs/1780A.pdf
I could say that my doctor proved that eating 399 carrots in 24 hours cures cancer. Just because he says it doesn't make it true. There is nothing in ANY medical literature that shows that stem cells currently work for hearing loss.
ReplyDeleteAlso, deafdude, you clearly have no idea how cx26 works. If you have it, not only do your ear hair cells not work, but you lack a protien to allow them to work. Even if you grew all new hair cells, they wouldn't hear because you have still not produced the protien.
Also, how do you expect your BRAIN to hear? Your brain has been deaf your entire life, it doesn't know how to hear. Even if you woke up with perfect ears tomorrow, YOUR BRAIN IS STILL DEAF and doesn't know how to use that information. You would never be able to understand speech without lipreading or sound like a hearing person. I'm sorry to say, your time is past! It is too late for you! That is why it is SO important for deaf children to have as much hearing AS SOON AS POSSIBLE, so that their brains do not become unable to process sound.
Oh, and lastly....if the stem sells are delivered via IV, how do they know to go and fix your ear???
Anonymous(September 10, 2010 6:25 AM),
ReplyDelete"Just claiming you've talked to someone who says people have been treated successfully does not qualify as proof."
RNL bio has treated Chloe. Therefore I believe their word that they treated others. I am still waiting for the boy's before/after audiograms as proof. I know people who are interested in being treated by RNL.
"As for RIO BNL, I'm just wondering why taking a few cells from your body, cultivating them and then injecting them back into your blood stream should cost 30 grand"
You didn't read my post, because if you did, youd know that you get 600 million stem cells for $30k. You won't get anywhere near this amount elsewhere.
Anonymous(September 10, 2010 9:51 PM),
"I've got sudden sensorineural hearing loss in one ear. Profound hearing loss. My audiograms shows hearing at 70dB, I think. I basically don't hear anything in that ear and HAs don't work for me."
Profound begins at 100db and HAs stop working above 120db. I suggest a retest and make sure they mask your good ear when testing your bad ear.
"I'm a little hesitant after reading about potential cancer risks after stem cell therapy."
That's why adult stem cells are used, not embryonic stem cells.
"what do the rest of the stem cells do for your body?"
Treat any disease/disorder you have and boost your immune system.
"I would love to hear again in stereo."
How are you functioning in mono? Is the only difficulty you have is with direction of sound?
Anonymous(September 12, 2010 6:44 PM),
"There is nothing in ANY medical literature that shows that stem cells currently work for hearing loss."
Wrong. Ive posted plenty of links to studies showing stem cells works in the animal model.
"Also, deafdude, you clearly have no idea how cx26 works. If you have it, not only do your ear hair cells not work, but you lack a protien to allow them to work."
Most people with cx26 have plenty of residual hearing and hear well with HAs. Their hearing isn't normal, but they must have some protein to allow some hearing. I used to have only 90db loss, now it's 115. I should get back to 90db at minimum then with my HAs, hear at 15-30db in most frequencies.
"Also, how do you expect your BRAIN to hear? Your brain has been deaf your entire life, it doesn't know how to hear."
Nonsense, I heard plenty of sounds and speech thru HAs. This is a world of difference than total silence.
"Even if you woke up with perfect ears tomorrow, YOUR BRAIN IS STILL DEAF and doesn't know how to use that information."
More nonsense and anti-stem cell bashing. Even prelinguals who get CI usually experience a significant improvement in hearing speech and new sounds. They do fall slightly behind postlinguals though.
"You would never be able to understand speech without lipreading or sound like a hearing person."
I don't even expect anywhere near normal hearing, let alone normal speech. I just expect to improve to 90db or so and hear at 15-30db with HAs and understand alot more speech than I currently do. I got realistic expectations, not delusions of perfection.
"That is why it is SO important for deaf children to have as much hearing AS SOON AS POSSIBLE, so that their brains do not become unable to process sound."
Very simple, fit them with the best HAs and crank the volume to the max. It worked great for me almost 30 years ago!
"Oh, and lastly....if the stem sells are delivered via IV, how do they know to go and fix your ear???"
I explained before that stem cells travel everywhere in your body and some will end up in your inner ear.
To Anonymous (September 10, 2010 6:25 AM),
ReplyDeleteYou should do some research on stem cells before asking dumb questions. Asking how stem cells know to go to your ear is like asking how aspirin knows how to go to your headache. They go all over your body and healed damaged tissues and cells. It's that simple.
You sound like an an anti-stem cell loon who works for or has stock in a CI medical supply company.
I suggest you educate yourself by reading the entirety of Deaf Dude's blog and the responses and discussions. There are ample links to give answers to all of your questions.
There is not a single medical journal that shows stem cells working for hearing loss in humans. NOT ONE.
ReplyDeleteI have read the blog, but there isn't a single link or sitation to proof for anything he says.
Also, CX26 often has a profound loss (and wrong again Deafdude, profound starts at 90, not 100 db, you are clearly uninformed).
If stem cells heal all, by do you think it with fix your hearing loss over any other damage? If you have a cut on your finger, it is just as likely to "heal" that over your hearing loss.
Again, your ignorance is showing when you say "crank up the HA's". Beyond a moderate hearing loss, HAs can NOT provide access to all speech sounds. It is simply IMPOSSIBLE. You can not amplify a 90 db loss in high frequencies to hear the "th" or "f" sound. In fact, they will not hear "sh" or the single most important sound in the English language "s".
What then? The child can NOT hear those sounds with hearing aids at a loss greater than about 60 db. What do you do then??
Re:
ReplyDelete"As for RIO BNL, I'm just wondering why taking a few cells from your body, cultivating them and then injecting them back into your blood stream should cost 30 grand.
You didn't read my post, because if you did, youd know that you get 600 million stem cells for $30k. You won't get anywhere near this amount elsewhere."
You miss my point. Why should it cost 30k just to cultivate cells.
Do you understand what cell cultivation entails? I tend to doubt it, or else you would see that 30k is a tall bill.
RE:
ReplyDelete"RNL bio has treated Chloe. Therefore I believe their word that they treated others. I am still waiting for the boy's before/after audiograms as proof. I know people who are interested in being treated by RNL."
Belief is not proof, don't you see that? Proof in the scientific world consists of peer-reviewed studies and facts that are confirmed by independent parties. Why is that so difficult to understand?
Can you point me to studies that show that adult stem calls don't cause cancer or lead to other problems? I'm very interested in the treatment but could not find any evidence on the Internet (or in past posts on your blog, despite what you say).
ReplyDeleteThanks!
"There is not a single medical journal that shows stem cells working for hearing loss in humans."
ReplyDeleteThat's because America is a decade behind. They however proved SC works in the animal model(fact #2). Overseas, more than a dozen children and adults successfully improved their hearing. I will go by their results rather than listen to the anti SC loons in America.
"Also, CX26 often has a profound loss"
The loss can range from mild to profound depending on the cx26 mutation(fact in article). Thus even if I have cx26, it won't preclude me from getting stem cells. Me and my parents are unsure if I should have a cx26 test before getting stem cells.
"profound starts at 90, not 100 db"
There's no standard and I define it by easy 20db increments.(20, 40, 60, 80, 100, 120)
"If you have a cut on your finger, it is just as likely to "heal" that over your hearing loss."
600 million stem cells is enough to heal your hearing and a bunch of other diseases/damage. Sure youll lose a couple million stem cells going to your cut.
"Again, your ignorance is showing when you say "crank up the HA's". Beyond a moderate hearing loss, HAs can NOT provide access to all speech sounds."
The goal is to give as much access to speech as possible, this is why high end HAs offer gains of 70db. I am getting stem cells in order to gain more access to speech, music and sounds.
"You can not amplify a 90 db loss in high frequencies to hear the "th" or "f" sound."
That's why the engineers were so wise to offer transposition(shift the highs downwards) in my HAs. :)
"You miss my point. Why should it cost 30k just to cultivate cells."
You forgot all the other costs, such as R&D, hiring the scientists, paying for the cultivators and other machines, buying/renting a hospital, performing preliminary medical tests, etc. They also need some profit to stay in business. Everyone has the choice of staying deaf or spending $30k. Many of us are saving up the $30k because in our opinion, it's worth the price to hear. No guarantees in stem cells, but no guarantees in CI(inferior to stem cells) either.
"Belief is not proof, don't you see that? Proof in the scientific world consists of peer-reviewed studies and facts"
I have seen enough proof that I might(as in maybe) go ahead in 2011. This will depend on the success/results of the rest of the 2010 pioneers. Others will choose to wait longer, but I bet their hearing is already much better than mine!
"Can you point me to studies that show that adult stem calls don't cause cancer or lead to other problems?"
I edited my post and added fact #6.
Re: adult stell cells are safe
ReplyDeleteDeafDude, you're hopeless.
You seem unable to grasp the fact that information that someone throws up on the web is not proof of anything.
You seem unwilling to acknowledge or understand that if one person gets an injection of adult stem cells and doesn't develop cancer, this is not proof that there is no danger.
You seem unable to comprehend that what is needed to establish the safety of a procedure are tests on a large number of people who receive the treatment, tests that look at how their health develops over time.
I won't even go into the fact that you have not provided any scientific proof other than hearsay that the procedures you write about are successful.
I would also point out that you misunderstand the resistance voiced by many here on your blog. You take the skepticism to mean that people are against stell cell therapy.
In fact, I believe most people are simply annoyed by your obstinate way of trumpeting hearsay as fact and not understanding the complexities involved in developing a reliable treatment.
Deafdude, in my experience, most of the resistance to stem cell treatments for deafness comes from the "cultural deaf" community who are horrified that the treatment may actually work.
ReplyDeleteSome of them (a.k.a. most people on AllDeaf) will tell you point-blank that they think that stem cells and/or gene therapy will never work, and we'll never have a cure for hearing loss or deafness. Most of them refuse to even play a "what if" type scenario with a hypothetical cure because the prospect makes them very uncomfortable. This group generally also opposes CIs, and sometimes hearing aids as well.
They hate anything that tries to make deaf people more "auditory" or that diminished sign language.
The poster who keeps questioning stem cells here has a more legitimate argument, that the sources given aren't unbiased as they are private companies who haven't submitted their findings to more neutral scientific or medical journals.
Deafdude, of the research you've done, have you come across regenocyte and their progress in Florida? how is their approach compared to BIO RNL?
ReplyDelete"YOUR BRAIN IS STILL DEAF" I cannot comprehend this word. Back more than 30 years ago I read in the papers that there was a person who was born deaf recovered his/her hearing if I recalled accurately. All it needed to do was to learn speech.
ReplyDeleteThe main problem of having a reliable treatment for hearing loss depends on Scientists and Doctors to carry out on humans with the current technology and know how. The second problem is funding, Scientists aren't getting any money to carry more trials on animals, which are getting nowhere. Animals' trials have been doing for over 10 years with great success. Animals can't talk or communicate and what goes wrong.
Thomas Edison the electricity inventor took many trials and error. It was the trail and error that he learns how to create electricity.
So it's the same for human heart transplant. The first heart transplant failed but it took many years later to be successful. There patients now living with their new heart over 15 years and all its takes to succeed was to do it on humans not animals.
Today, there are more Scientists and Doctors are convinced to carry out Stem cells cure all thanks to the offshore stem cells clinics. If you look at other forums like SCI (stem cord injuries) scientists are working for a solution with current knowledge they have. In the past, they weren't even interested. Today, there are on going SCI safety trails in China and Hong Kong thanks to Dr. Wise Young of Rutgers. He like others in the past was never convince to carry out any trials due to lack of efficacies and safety.
Thanks to company like Geron, they are now doing Phase 1 safety trials with ESCs. Hopefully, all these will snub out naysayers who says Stem Cells are not safe.
Andy
"You seem unable to comprehend that what is needed to establish the safety of a procedure are tests on a large number of people who receive the treatment"
ReplyDeleteThis has already been done in many countries, except for America.
"than hearsay that the procedures you write about are successful."
Thousands of people have had hundreds of different diseases/conditions treated by stem cells outside America.
"You take the skepticism to mean that people are against stell cell therapy."
The skeptics do their research and become pro stem cells.
"trumpeting hearsay as fact and not understanding the complexities involved in developing a reliable treatment."
So you are calling the thousands of success cases for all types of diseases "hearsay?" That's what the anti stem cell loons say.
"Deafdude, in my experience, most of the resistance to stem cell treatments for deafness comes from the "cultural deaf" community who are horrified that the treatment may actually work."
Explains why they constantly bash stem cells and hope it won't happen in your lifetime. Ive already shown them wrong, but point out they don't have to get stem cells themselves. Others, like me wish to improve our hearing.
"Most of them refuse to even play a "what if" type scenario with a hypothetical cure because the prospect makes them very uncomfortable."
Deafness is now a choice and they have the right to choose to stay deaf. Id take any cure for deafness, namely stem cells.
"private companies who haven't submitted their findings to more neutral scientific or medical journals."
The politicians don't allow the media to publish journals in America on the success of stem cells. But this does not stop the pro stem cell guys like me from researching and reading all those positive testimonials of success for all types of diseases/conditions.
"have you come across regenocyte and their progress in Florida? how is their approach compared to BIO RNL?"
Forget regenocyte, they simply remove a few thousand bone marrow stem cells then reinject them in your blood. You need many millions of stem cells, which RNL can provide. Don't expect proper stem cell treatments in America, they are a decade behind.
"Today, there are more Scientists and Doctors are convinced to carry out Stem cells cure all thanks to the offshore stem cells clinics."
Many have left America to do their research in pro stem cell countries. Ill be visiting China to be treated by RNL.
"Hopefully, all these will snub out naysayers who says Stem Cells are not safe."
Adult stem cells are safe, but not embryonic as ive pointed out in my post with links.
This [performance of longer-term tests establishing stem cell safety] has already been done in many countries, except for America."
ReplyDeletePlease provide a link to at least one peer-reviewed scientific study that proves your statement. Simply making this claim isn't sufficient. You don't give links because the studies don't exist.
"Thousands of people have had hundreds of different diseases/conditions treated by stem cells outside America."
Sure, maybe they have, but please provide a link to a scientific study by an independent team that comes to the conclusion that they were successfully treated. Websites by money-hungry clinics are not proof. You have never provided such a link because the studies do not exist, and you know it.
"The skeptics do their research and become pro stem cells."
Once again not true. In doing the research, I have discovered that none of your claims are substantiated.
"So you are calling the thousands of success cases for all types of diseases "hearsay?" That's what the anti stem cell loons say."
Once again, I defy you to provide a link to a peer-reviewed scientific study by an independent institute that confirms these "thousands" of successes. Once again, you will not, because you cannot.
The only successes -- and they have been few -- have been reported in the popular press or by companies that stand to profit from the procedure.
I am hard of hearing and I want stem cell treatment to succeed, but I feel you are acting irresponsibly by not sticking to the facts and giving people false ideas about what is possible.
I want links DeafDude, not your half-baked claims!
September 20, 2010 12:07 PM
Hi Deafdude, I was wondering if we can discuss my matter by e-mail: rpw1283@gmail.com. There's a lot things that I want to say but its a bit too public for me to post.
ReplyDeleteHowever, there are some things that I can say right here: All I can say is that I'm in my mid-20s. I had hearing loss since I was 19 years old.
I am thinking about looking into RNL Bio's treatment but I don't have $30k to burn. My hearing on my right is normal. Its close to 0db. However on my left ear, I do have a 40 to 45 db loss (overall). Before I had a 30 db loss. Its sensorneural-hearing loss.
I'm very fortunate that I'm able to still hear well with one ear. However, I would like to get my left ear fully restored someday.
If I get my left ear hearing improved, I will look into possibly joining the service (military) immediately since they require that I have a db loss (on average) of 30db. It has been my dream and my personal goal to join the military. However, because of my bad left ear...they cannot accept me. :(
Hopefully, if I have the money now...I will make my dreams turn into a reality. This stem cell treatment (adult) gives me a reality to stay "hopeful" and "optimistic."
I am certain that if I received the same type of treatment that Chloe recieved last August, I should have some improvements. Even if its a 20-25 db gain on left, that's fine with me! Its better than nothing! Right?!?
Anonymous, links are up(fact #7). What's your degree/decibal of hearing loss? Regardless, my hearing is way worse than yours and id be happy to be hard of hearing instead of deaf. If my hearing was as good as yours, I would not mind waiting a while for stem cells as id be able to hear well with HAs. Stem cells would let you hear well without HAs someday. I just want to hear well with HAs for now.
ReplyDeleterpw, You have three options:
1. Wear a CIC or mini HA. This should aid your "bad" ear to normal.
2. Request a waiver. After all, you can hear well with your good ear and your "bad" ear is far from deaf.
3. Get stem cells. Perhaps the military will accept you into a US clinical trial within a decade or they will pay for you to be treated in China. Good chance youll improve enough to join the military, they need more wonderful soldiers like you. :)
I also am emailing you the above reply. Feel free to ask anything you want in the email or on my blog.
More news from that serious company that is willing to give us all a 30,000 deal on our ears.
ReplyDeleteRNL Bio offers special dog cloning opportunity at $50,000
http://www.prlog.org/10120774-rnl-bio-offers-special-dog-cloning-opportunity-at-50000.html
When will the alarm bells ring?
Here's one very interesting news from Mirrors.co.uk
ReplyDeletehttp://www.mirror.co.uk/news/top-stories/2010/09/05/i-grew-a-new-face-stem-cell-jabs-miracle-for-mum-pat-butler-46-115875-22539583/#ixzz0ygZ5qELF
It's about a woman getting a stem cells to improve her face.
If that's not news to naysayers and that will never be ever for them. They will always say it's fake.
Andy
I was just told by my Neurotologist that I probably have a variation of Meniere's disease (low frequency hearing loss, tinnitus, but no vertigo). I have about 50 dB at 250HZ and 40 dB at 500 HZ virtually identical loss in both ears, going up to pretty much normal range. He said the damage is permanent and might be progressive. I'm wondering if stem cells could possibly be an answer in a case like mine. I had perfectly normal hearing five months ago, and my ears went out at virtually the same time.
ReplyDeleteYoull want to get stem cells sooner rather than later. This will hopefully improve your Meniere's disease, reduce your tinnitus and improve your hearing or at least stop it from getting worse.
ReplyDeleteMy tinnitus is almost gone. I don't need to worry about it anymore. I am taking control of it and I hope that I can focus on getting treated for my hearing loss (left ear) soon.
ReplyDeleteHopefully, very soon, stem cells will cure most types of deafness, the exceptions being genetic deafness or a situation where the cochlea is destroyed. I can see noise-, illness-, and chemical-induced hearing loss being a thing of the past by 2025. It's great the research is being done in China and Korea. I think due to our medical care being so expensive in the U.S. more people will go overseas for these treatments.
ReplyDeleteThe stem cell to re-generate inner ear hairs is not available in the clinics. Chloe is lucky and she suffered from autoimmune disease. Her case is different from most of us.
ReplyDeleteI can only agree with what Peter said. I tried to reach both RNL Bio in the States and in Korea, but they ignored my inquiry. DeafDude - could you share the contact info with us if it is different from their websites?
ReplyDeleteI also find no single case on the Internet of a deaf person being treated by stem cells. Can this be true? Other than Chloe, I mean.
Hopefully, very soon, stem cells will cure most types of deafness
ReplyDeleteThis is already a reality.
The exceptions being genetic deafness
Only partially true, ive explained this in a previous post.
or a situation where the cochlea is destroyed.
That's why I don't recommend CI and I will never touch CI myself.
I can see noise-, illness-, and chemical-induced hearing loss being a thing of the past by 2025.
Yes, except by those against stem cells and choose to be deaf.
I think due to our medical care being so expensive in the U.S. more people will go overseas for these treatments.
Another reason to go overseas is America is a decade behind. The time to hear is now!
Peter...
The stem cell to re-generate inner ear hairs is not available in the clinics.
Not in America, but yes in some countries.
Chloe is lucky and she suffered from autoimmune disease. Her case is different from most of us.
You did not read my post mentioning that this boy born deaf got an improvement! The anti stem cell loons spout misinformation and never read the facts!
Anon...
I tried to reach both RNL Bio in the States and in Korea
Can you post here what you said in the contact form? Either you said something rude, pointless and anti stem cells or they are busy and you should contact them again(but first post it here)
Can this be true? Other than Chloe, I mean.
There's a short article on Richard being treated for MS and his hearing improved 20db. There's a few blogs by people being treated for hearing loss. Are you even interested in stem cells? What's your hearing/audiogram like?
Hi, I'm non Anon October 25, but I would be interested in getting the links to the blogs by people being treated with stem cells for hearing loss. I wasn't able to uncover them by googling.
ReplyDeleteFirst, are you even interested in stem cells? What's your hearing/audiogram like? What did you say to RNL Bio?
ReplyDeleteHi DeafDude,
ReplyDeleteI wrote them telling them I was interested in getting stem cells and what kind of improvement was possible. I was not rude or anti-stem cell - I want the treatment! But I'm going to have to take out a loan to pay for it, so I want to be pretty sure it'll be worth it. My mother's too old to help me out financially and my dad passed away a few years ago.
Can you tell me how you contacted them? Have you or your family talked to them? I'm also a little bit unsure because, like I said, I haven't seen any other reports other than Chloe's, and I don't have autoimmune hearing loss.
I first contacted them thru their website. If they don't respond a second time, I will contact them on your behalf. I can tell you that ill be happy for a 30db improvement myself. I have no idea how bad your hearing is or what kinds of HAs you wear. It's possible better HAs programmed for maximum amplification would let you hear quite well till you save up for stem cells. You can wait for me to get stem cells first, I might get stem cells in 2011 if it's a success for the other pioneers.
ReplyDeleteAny chance with this new Congress that we'll see stem cell research limited again in the U.S.?
ReplyDeleteTranscript of the live Twitter Q&A with RNID Chief Scientific Advisor Sohaila Rastan
ReplyDeletesource: http://www.rnid.org.uk/mediacentre/news/2010/twitter-sohaila-1711.htm
Good find. Let me say that while they believe stem cells are 10-20 years away, they can only speak for America. You can get stem cells since 2009 in several other countries. I will also say that anyone who is serious about getting stem cells should save their ears by avoiding CI.
ReplyDeleteI was born with sensorineural hearing loss which was caused by my mother contracting rubella while she was carrying me. I am over 50 now and my hearing has deteriorated from severe to profound during my adult lifetime so it appears I am subject to the same aging concern as normal hearing persons. I have worn hearing aids all my life and I speak very well, but I am getting to the point where communication has become more difficult than it used to be. I will follow your progress and hopefully see path toward a real improvement. Thank you.
ReplyDeleteLike many of the people following your blog, I too am skeptical because I find no cases on the Internet of people receiving successful stem cell treatment for deafness. Chloe is well known, but she had a very specific form of hearing loss, and you have not given any more details of the few cases you list at the start of your most recent post.
ReplyDeleteI guess my question is this: Why haven't you gone through with the treatment if you feel so sure? It seems to me that you must have doubts yourself. Why not be honest and discuss these here? If stem cell treatment is effective, the truth will out. But you must admit that those who are skeptical and don't want to risk losing the very high fees on a unsuccessful treatment have grounds to be skeptical because there is so little information out there.
Thanks,
Abe
Also, if I might add something -
ReplyDeleteJust because people are skeptical doesn't mean their minds won't be swayed later. It is just a reflection of the current lack of information. To call people loons because they are skeptical and want more information is dogmatic and not really a service for those whose concerns are legitimate.
Just assume the case of a parent with a child with severe hearing loss. Do you actually fault them for wanting to have more information before they drop the thirty thousand for their child to have the treatment? Do you call them loons for wanting to make sure their child is not the victim of a scam?
Be honest and mature and discuss your doubts are. It would do people a greater service than "it works now" when the dearth of information out there raises many questions.
"I too am skeptical because I find no cases on the Internet of people receiving successful stem cell treatment for deafness."
ReplyDeleteI have posted a few cases in my blog, including this boy.
"Chloe is well known, but she had a very specific form of hearing loss"
Stem cells has been proven to work for sensorineural loss, period.
"Why haven't you gone through with the treatment if you feel so sure?"
I am saving up and waiting for more pioneers to go ahead as I mention previously.
"To call people loons because they are skeptical and want more information is dogmatic and not really a service for those whose concerns are legitimate."
I have pointed out repeatedly what the anti stem cell loons intentions are. They aren't skeptics, they truly are against stem cells. This is one reason America is so far behind and I have to travel for stem cells.
"Do you call them loons for wanting to make sure their child is not the victim of a scam?"
I would respect their choice if they wanted to wait, but I take offense when they say stem cells are snake oil and it won't be available for 50 years, this is flat out wrong.
"It would do people a greater service than "it works now" when the dearth of information out there raises many questions."
There is information on thousands of animals and humans for over a hundred different diseases. I have provided many links in this post alone and anyone can search on Google for the facts.
Where has it been proved that stem cells are an effective treatment of sensorineural hearing loss?
ReplyDeleteYou've made this claim several times, but I must say I have not found any proof anywhere on the Internet, not even on your blog. All the information I find says the exact opposite and advises caution.
I would surely be most grateful to you if you could tell me where I could get that information. It is very frustrating that you are so evasive on this point because I would be overjoyed to find a treatment for my hearing loss.
As for your own hesitancy, why would you want to wait for "pioneers" if you yourself are so sure? I can certainly tell you this. If I were as sure as you say you are, I would go out and borrow that money and have the procedure done tomorrow!
I proved everywhere in my blog, including this post. I am not evasive at all. This link ---> stem cells works! <--- was posted in my post above under fact 2. I have several other links to similar studies in my other blog posts.
ReplyDeleteWhat is your hearing loss like and how soon would you like stem cells? Search for "audiogram" on my blog. I was born deaf and im not in a hurry, but would like to get stem cells before 2015. My parents are skeptics(but not at all against) and would like to see more results before they chip in. I am so sure of stem cells, the question is how much improvement can I expect? I will have alot more answers sometime in 2011 and if others are attaining at least 30db improvement, im going ahead myself.
Thanks, DeafDude.
ReplyDeleteI see that the problem is that we have a different idea of what proof. In that link you provided, it only says that researchers have restored hearing in rats and they haven't even begun tests on nonhuman primates yet. As much as I want to have my hearing restored, I can't drop 30,000 based on experiments done on rats!
Thanks, though, and keep up the good work. I appreciate your keeping us all informed here. Let us know when you go through with the treatment yourself.
Several humans have gotten stem cells for hearing loss, just not in America. In the animal model, they have proven stem cells to work and im seeing stem cells work in the early human pioneers as well.
ReplyDeleteHow much of a hearing loss do you have and how much improvement do you expect? Chances are, your hearing is way better than mine and id be happy to have hearing as good as yours. Id probably hear quite well with my powerful HAs.
Hair Cell Regeneration and Hearing Loss
ReplyDeletereport.nih.gov/NIHfactsheets/ViewFactSheet.aspx?csid=94
IGF-1/Gelatin Hydrogel for Acute Sensorineural Hearing Loss: Phase I-II Clinical Trial
ReplyDeletesource: http://www.kuhp.kyoto-u.ac.jp/~ent/ClinicalTrial/SNHL-IGF-Gel-1/Gel_Eng.html
Deafdude - my loss is such that if I got an improvement of 30db I would probably even be able to hear well without HAs. So I have the luxuryof being able to wait for more conclusive results. And a lower price.
ReplyDeleteGood luck on your quest.
Abe
interesting recent article on rnl bio the company that cured chloe
ReplyDeletehttp://www.nature.com/news/2010/101123/full/468485a.html
Everyone interested in stem cell therapy should read the article in the previous post, which reports on the deaths of patients who received stem cell treatment using cells formulated by RNL Bio.
ReplyDeleteThis is what I meant earlier by saying that DeafDude had no conclusive proof that stem cell therapy is safe.
What is also interesting is that, despite DeafDude's claim that stem cell therapy works, the president of RNL Bio's subsidiary in the United States, Jin Han Hong, himself admits no such proof exists. I quote:
"Hong admits that there is not yet conclusive clinical-trial evidence that the treatment can help these various conditions [Parkinson's disease, kidney failure and diabetes], although the company is running trials in South Korea."
I would say that this shows DeafDude has been proven wrong on every point (effectiveness of treatment, safety of treatment).
The deaths were not related to stem cells. Those are just scare tactics to restrict or ban stem cells which have helped thousands of people. It's funny the anti stem cell loons won't show you guys a single article on the success of stem cells.
ReplyDeleteAs for the "not yet conclusive clinical-trial evidence" he says that the company offers only stem-cell isolation and banking services, not stem-cell therapy. "We don't offer therapy," he says. "It's true that we note the potential but we don't make promises."
Guys, this means he doesn't want to spread unrealistic expectations, especially not this early in the stem cell technology development. I have talked to RNL and they are being honest by not claiming stem cells will cure my deafness and give me normal hearing, but simply offer potental for some extent of improvement. There's no guarantees in any type of medical procedure, this isn't limited to stem cells.
Ive said many times that im currently observing the pioneers who got stem cells injected into their arm(safest place) and their hearing is improving. It will take a few more months for their improvement to be final. I will update you all on the extent of improvement each pioneer achieved.
1. After coming back from China, he died just two months later during surgery for a cardiovascular problem. He died of breathing problems after the procedure.
2. The 18-month-old boy, whose Romanian parents lived in Italy, was injected in the brain with stem cells and subsequently died. “What we had was an unjustified surgical procedure with complications which was then not properly dealt with. They had injected the stem cell into the brainstem, which is the most delicate structure in the brain.”
3. The company is contesting suggestions that the two patients died because of the treatment they received and contends that the deaths and the therapy they received are not related at all. “The 73-year-old patient who died in Japan was a former surgeon, who had been in a state of fatigue, probably due to the flight, and failed to inform Japanese doctors that he previously had heart surgery before the stem cell injections. The patient who received stem cell treatments in China didn’t die there, but in a Korean hospital after failing to wake up from anesthesia, so it’s hard to see the cases being related,’’ Ra said.
hello there,
ReplyDeletemy 4 yr old daughter has sensorineural hearing loss by birth..the doc suggested her cochlear implant..in ur opinion should i wait foe stem cell? is it safe?
Read Deafdude's blog, all your answers are there. Stem cells are available now.
ReplyDelete"Back from the Dead
ReplyDeleteSound progress is being made in efforts to regenerate sensory cells".
source: http://harvardmedicine.hms.harvard.edu/fascinoma/fivesenses/hearing/back.php
"Biopharmaceutical Company from South Korea Not Guilty for Deaths after Stem Cell Treatment"
ReplyDeletesource: http://www.chxa.com/a/biopharmaceutical-company-from-south-korea-not-guilty-for-deaths-after-stem-cell-treatment/
"Manufacturing and in vivo inner ear visualization of MRI traceable liposome
ReplyDeletenanoparticles encapsulating gadolinium"
http://preview.jnanobiotechnology.com/content/pdf/1477-3155-8-32.pdf
"Adeno-associated virus-mediated gene delivery into the scala media of the normal and deafened adult mouse ear"
ReplyDeletesource http://www.nature.com/gt/journal/vaop/ncurrent/full/gt2010175a.html
Wow! just read the above artical,things are getting real close,praise God.
ReplyDeleteNo new posts deafdude? What gives?
ReplyDeleteDeaf Dude, please give us a heads up. We are anxious for an update.
ReplyDelete"Four Researchers Appeal Grant Reviewer Decisions; Stanford Scientist Cites Broader Concerns"
ReplyDeletesource: http://californiastemcellreport.blogspot.com/2011/01/four-researchers-appeal-grant-reviewer.html
"Development of gene therapy for inner ear disease: Using bilateral vestibular hypofunction as a vehicle for translational research"
ReplyDeletesource: http://callierlibrary.wordpress.com/2011/01/19/development-of-gene-therapy-for-inner-ear-disease-using-bilateral-vestibular-hypofunction-as-a-vehicle-for-translational-research/
wow!the above article gives one the impression that stem cells could be beaten to the finishing line by gene theropy,or even by the pharmaceutical road,all of which has set alight the flame of hope in me to keep on going with my music despite considerable hearing loss and severe tinnitus.please keep the news posts coming,thank you.
ReplyDeleteI feel that 2011 will be a good year toward hearing loss research. Tinnitus' origins caused by the noise has been found to come from the brain. That means there are more possible treatments. With an holistic approach and a serious use of positive affirmations, the tinnitus could be reduced and more ignored. It can be a real challenge for the people with hearing loss and fortunately more alternatives will be available for many, if not all, of us.
ReplyDeleteTherapeutic Pathways...
ReplyDeletehttp://www.otologicpharmaceutics.com/pipeline.html
"Functional Effects of Adult Human Olfactory Stem Cells on Early-onset Sensorineural Hearing Loss"
ReplyDeleteSOURCE: http://onlinelibrary.wiley.com/doi/10.1002/stem.609/pdf
Would this work for chronic hearing loss?(over a long period)or just in the developing ear?
ReplyDelete"Nanotechnology and the treatment of inner ear disease"
ReplyDeletesource: http://onlinelibrary.wiley.com/doi/10.1002/wnan.125/pdf
Without wanting to be overly pessimistic, I believe the lack of news about stem cell research for deafness shows just how far off any therapies will be.
ReplyDeleteI've scoured the web, but I find very little of substance in this field.
"Without wanting to be overly pessimistic, I believe the lack of news about stem cell research for deafness shows just how far off any therapies will be."
ReplyDeleteI'm with this poster. Why has there been no news whatsoever from RNL Bio since Chloe? Seems like our hopes were gotten up for nothing.
"Pandit said: "We worked on sensorineural hearing loss or hearing loss created by nerve damage. This is the most common form of hearing loss. Nasal stem cells are versatile as they can convert into any other cells. They are easy to harvest and are constantly replaced”."
ReplyDeletesource: http://topnews.us/content/235087-indian-doctor-finds-cure-against-hearing-loss-nasal-stem-cells
Though it feels like we're going through a dark tunnel with very little light at the end of it,research is going on,progress IS being made.11years ago I thought I'd be cured by now.I've made it through a decade,daily I try to be philosophical.Scientists are saying 10 YEARS,at 55 yrs old with progressive hearing loss and severe tinnitus,we cannot give up,it will happen.
ReplyDelete"Hearing loss with age and noise exposure can be reversed"
ReplyDeletesource: http://www.gandhi-king-give.org/hearing-loss/hearing-loss-with-age-and-noise-exposure-can-be-reversed
I haven't updated in a while as I have no further news at this time. I hope to find out the results of the boy's progress soon. Also several other pioneers are getting stem cells, ill update when their results become known. Most of your questions have already been answered in the FAQ or in the above comments.
ReplyDeleteThanks Deafdude,great to know you're still there.
ReplyDelete"Abundant Stem Cells Proving To Be A Cure In Hearing Loss Problem
ReplyDeleteRead more: http://www.articlesnatch.com/Article/Abundant-Stem-Cells-Proving-To-Be-A-Cure-In-Hearing-Loss-Problem/2160205#ixzz1Firare95
Under Creative Commons License: Attribution No Derivatives
"To hear or not to hear"
ReplyDeletelink: http://www.france24.com/en/20110306-2011-03-06-1143-wb-en-health
Thank you so much for sharing. I just put in an application with Don Margolis's group for my 4 year old daughter that has moderate to severe SN hearing loss caused by jaundice. They refered us to a Chinese clinic and quoted us a cost of $18,500. They have recently shortened their treatment time from 30 days to 15. That price reductions makes me think that they are getting better at it because they have done so many and more people wlll be able to afford it.
ReplyDeleteKeep posting. ~ alli's mom
I wish you luck but the price reduction just says to me they don't have any suckers left who are willing to pay double that amount and the have to lower the price to keep making money.
ReplyDeleteIf the procedure really worked, you would see discussions about it all over the Internet. What do we have? Nothing! Why the secrecy? And if DeafDude really thought the chances were good, he'd have already gone through with the procedure!
I wish you the best of luck for your daughter! Keep us updated on her progress!
ReplyDeleteThe temporary price reductions are an incentive to get more pioneers to go ahead. I will probably have to pay full price, but I get the benefit of knowing how much improvement to expect and also technology will have improved due to the clinic having experience on the pioneers.
Stem cells does work, please read up on Chloe's success all over the Internet. I have also mentioned several other pioneers who achieved an improvement. I am going ahead with stem cells after several dozen pioneers have gone ahead first, as I've said before.
Good on you Deafdude,we pray that it will be successful,and your determination will pay dividends.
ReplyDeleteActually 200 million cells every 5 days is the absolute minimum that you should consider. You start reacting the stem cells the third time as your body starts treating them as an irritaion. I had a minor reaction the third time,i.e a lump near the site of the IV that went away in a few days. The problem with the Chinese company that gives you stem cells is that they do not give you all of your own, i.e. they give you another persons as well, which increases your chance of rejection. When I contaceted them and said that I wanted only my own, they were not flexible. L Francis
ReplyDelete"GenVec Technology Used to Restore Lost Balance Function"
ReplyDeletesource: http://www.genengnews.com/industry-updates/genvec-technology-
used-to-restore-lost-balance-function/114770
Hi,
ReplyDeleteIt's very interesting and helpful to see your blog post on news of stem cell research and treatment. Your post gave me a hope, when I was going low. It's good to see your spirit and positive attitude among the other negative talkers/thinkers, who like to wait and do nothing to research more about how to improve their hearing..!!! I have read every post/comments of yours and others in your blog. It is a great debating section and also, a chance for someone to know more on treatment aspect.
Everyone had encouraged me to get CI, but I am glad I can now prove them wrong. I also wanted stem cell treatment at any cost and asap! It's only by reading your blog that I found that the treatment is not too far ahead e.g. 10yrs or so, but it's already here!!!!
I would like to talk to you more on treatment aspect. Can you please send me an email at bdesai86@yahoo.com and just say 'hi' to get our meeting started?
Francis, did they give you any pure cord blood stem cells as well as using your own stem cells? I read that pure cord blood SC does not invoke an immune reaction, but you do have the right to request only your own stem cells be used. When I am ready to get stem cells, I'm sure you and others can recommend the best stem cell center!
ReplyDeletebdesai86, what is your hearing loss like and do you have any audiograms? Chances are that better HAs or reprogrammed HAs will let you hear better till you can save up for stem cells. Give it a few more years for hundreds of people to be successful with stem cells and CI will quickly fade away into obsolescence(not needed) and be forgotten! I am saving both of my ears and so are many others!
"Regenerating the Ear and the Eye"
ReplyDeletehttp://www.youtube.com/watch?v=HtQQ52vrSks
WOW! nano science looks amazingly promising,Thanks.
ReplyDeleteHave you gotten stem cells yet? I seem to remember that you were planning to get them by now.
ReplyDelete"Safety of Autologous Human Umbilical Cord Blood Mononuclear Fraction to Treat Acquired Hearing Loss in Children"
ReplyDeletesource: http://www.clinicaltrials.gov/ct2/show/study/NCT01343394?term=acquired+hearing+loss&rank=1
Can anyone please provide info for our son who was born with unilateral hearing loss. Will these therapies work? Please email me at renaissanceacademy@yahoo.com
ReplyDeleteIs anyone looking toward having Stem Cell treatment for SNHL or Deafness, in Korea anytime before Feb. 2012? I am from Chicago, IL and want to have stem cell treatment. Email me at: bdesai86@yahoo.com
ReplyDeleteA few more weeks and I will get a proper hearing test done. I had 600 million stem cells 2.8 months ago. So far my hearing has improved, but is still not normal.
ReplyDeleteI have normal hearing up to 3000Hz, then it dips. At 6000Hz I was -R60db,-L70db. I think that I am now -30db in at least one ear via an online test, but I need to get this done professionally. I got only adipose derived MSC's from Cryocord, which is what I wanted.
Deafdude - when you get your treatment, have the fat removed by liposuction and then get the company to store some (or expanded MSC's)for you. That way when you get the treatment done again after 6 months, you will pay a lot less, i.e. $20,000 the first time, $10,000 the second and if needed 9 months later, $10,000.
You need to leave a big gap between the 600 million stem cell infusions, as your body starts to react to them as "invaders".
I think that age is a factor here and me being 48 means that many stem cells were lost in repairing other things. My knees and left ankle are both much better after the stem cell injections (in addition to the 600 million), but not completely cured. The CEO of Cryocord was planning to get his knees injected with stem cells as well, but said that he was intending to get (I think from memory) three injections over a few weeks or months.
L.Francis
Hi L. Francis,
ReplyDeleteWhere did they inject the stem cell to you, such as, which area of your body, for your hearing loss treatment? Where did you have your liposuction, in Cryocord or Australia? How much USD did you have to pay for it? So, you paid $20,000 USD for your 600 million stem cell treatment? What was the other cost summing up for your flight, staying, and meal?
We all would like to see your Before and After audiogram, so send them whenever you can. Thank you.
"From High-Tech to Biotech Using Stem Cell and Gene Therapy to Treat Hearing Loss"
ReplyDeletesource: http://www.asha.org/Publications/leader/2011/110607/From-High-Tech-to-Biotech-Using-Stem-Cell-and-Gene-Therapy-to-Treat-Hearing-Loss.htm
the above article is pretty damning re. the ability of adult stem cells to actually treat hearing loss (at least, to regenerate hair cells). and it names "decades" as a reasonable time line for the development of technologies beyond cochlear and hearing aids. seriously i want to be excited by the "chloe" story and the "boy born deaf/hoh" etc etc but a sample size of 2 is nothing you can draw real inferences on.
ReplyDelete"From High-Tech to Biotech Using Stem Cell and Gene Therapy to Treat Hearing Loss"
ReplyDeleteAlthough it's publish in Jun 7, 2011 on the site, that's a very old article about hearing loss treatment. Doesn't look new to me. Sometimes such site has the habit of posting old news.
Andy.
Erm, it references LOTS of articles published in 2010 and 2011. Looks recent to me...
ReplyDelete@ June 16, 2011 9:48 AM Anonymous.
ReplyDeleteOld as in way back 2004 or much older. I could post similiar news like that but I don't keep the old links.
Andy.
Hi guys. I'm an 18 year old male and deaf in my left ear, but wear a hearing aid in my right ear. I was born hearing impaired. I think my hearing impairment for my right ear is in the severe range and profound in my left ear. My dad believes my mom getting sick with a cold during her pregnancy with me was a cause of my hearing impairment.
ReplyDeleteI am interested in getting this treatment and anyone, please give me some details about where these services are and how to contact them, etc.
Thank you.
"Sanofi hunts for drugs against hearing loss"
ReplyDeletesource: http://uk.finance.yahoo.com/news/UPDATE-1-Sanofi-hunts-drugs-targetukfocus-1188086947.html?x=0
Hi guys. It's me again. I signed up with RepairStemcells.org.
ReplyDeleteThe costs will be $18,000 and that includes a hospital suite with companion(s) so no hotel is needed, just food and incidentals. Ground transportation to and from airport. The price had originally been $26,600 though.
There would be a 15 day stay in a hospital suite.
Type of cells: six umbilical cord stem cell treatment from donors- one implant every three days (had previously been 5 days)
The location is in China.
There is a questionnaire below all of the information I just typed up that has to be filled out.
I don't know if the costs include the stem cells or not.
But I found out through my mother that my hearing impairment is through my nerves not forming or the signals not getting through?
I'll post up more information later.
look forward to hearing more from you JB FLA. best of luck!
ReplyDeleteThank you, but I've decided to wait and do some more research. Sorry, don't want to let you down. :(
ReplyDeleteBut I am still seriously considering doing the stem cell treatment. I have high hopes that it will work, but I'm not going to be absolutely certain that it will. But keep your fingers crossed and pray to God that it does. :)
If it does work, I will be so unbelievably happy about it.
Does anyone know if this procedure will work if my ear nerves aren't currently connecting all the way?
ReplyDeleteHey JB FLA.. where did your mom got that info about your ear nerves not connecting all the way ? I think her description is too generalistic and might mean a lot of things.
ReplyDeleteIs she refering to the VIII cranial nerve (also known as vestibulocochlear nerve), the cochlea or connections between the cochlea and the VIII nerve ?? You might like to get some info on yr hearing loss and do some tests before deciding to do the treatment.
Hey guys, it's me again. I went to the audiologist today and had a hearing test. My hearing loss is in the 50-60 decibel loss range in my right ear. We didn't test my left ear, but I'm almost deaf in that ear.
ReplyDeleteMy mom and I spoke with the audiologist about the stem cell treatment today. The audiologist said she didn't really know too much about it. But she didn't seem turned off by it, which was encouraging. She did say though, that the United States hasn't advanced in that section because hearing aid companies would lose all of their profits.
I talked to my mom again about the cause of my hearing loss and this time she said my hearing loss is due to my hair cells not forming all the way. My hair cells are bent sideways. She (my mom) didn't clarify herself the last time, she said "nerves", I thought she meant my nerve that connects to my brain, but she actually meant the hair cell nerves in my inner ear.
So, the problem is in my inner ear hair cell nerves.
I'll keep coming back here.
This is the interview of Chloe Sohl, the girl who went through the stem cell treatment- http://www.youtube.com/watch?v=i_jqPbTc0Ug
ReplyDeleteHer Facebook- https://www.facebook.com/profile.php?id=1066950249
I talked with my dad last about this stem cell treatment. He seemed interested by it. But he told me that my hearing loss is from my nerve cells not connecting, saying that my ear itself is fine, but the nerve isn't. Which is different from what my mom told me. So, I've decided I want to get retested again to get diagnosed again to be completely sure. I also need to see if the cause could be genetic as my mom was adopted and I don't know if hearing impairments may have happened in her biological family.
ReplyDeleteI did some more research and found that my hearing loss is in the moderate range in my right ear, not severe. I also found that a range of -10 to 15 hearing loss is in the normal range. So if I can get a hearing improvement of up to 30-60 like mentioned in my deafdude, that could bring back up to normal or near normal, which is excellent.
JB FLA, you have SNHL which means you are missing some of your inner hair cells and all your outer hair cells. A normal cochlea has 3000 IHC and 12000 OHC for a total of 15000 hair cells. We both have alot in common and we are both planning to get stem cells in a few years once we see results from more pioneers. Can you share your audiograms? You may need to get stem cells a few times to bring your bad ear to near normal. In my case, both of my ears are bad. Check my other blog posts, including my audiograms and feel free to ask questions.
ReplyDeleteHey deafdude, the information I received from Repairstemcells.org said they treated a 19 year old male with sensorineural hearing loss. He's been impaired since birth, he had around 50% of his hearing remaining. The threshold in his left ear was 65 decibels and 60 in his right. He received 6 umbilical cord blood derived stem cells by IV and lumbar puncture. He received 2 mild headaches from the lumbar puncture out of the 4 lumbar punctures total.
ReplyDeleteOn discharge, it says he hasn't noticed any differences in his hearing, but says his mother felt there were some gains.
3 months later, the patient reports that he is satisfied with the outcome of the treatment. He's experienced moderate improvements overall. He feels he is continuing to gain improvements.
And deafdude, I'll post up my audio-gram as soon as I find them. I hope to go through the treatment soon, maybe late this year or in a year from now.
ReplyDeleteI'm going to do some testing to find the cause of my hearing impairment. Yes, I do have SNHL and was born that way. My dad said my hearing impairment is from thing, my mom said another. Plus, my mom was adopted, so I don't know if hearing impairments or deafness may have ran on her side of the family. So, I have to get tested to see if I have a gene for deafness.
I've worn hearing aids since I was 3, but I don't wear a hearing aid in my left ear anymore. I don't use sign language, I don't know any sign language, so I speak and communicate orally. But I did use sign language as a toddler though.
Do you know how to get into contact with RNL bio? I'd like to get in contact with them find out the costs and location, etc.
Nice talking to you.
Thanks. :)
"Biological Restoration of Hearing; Are
ReplyDeleteWe Gett g y C ose e Getting Any Closer?
Matthew W. Kelley, Ph.D."
source: http://www.hearingloss.org/convention/2011Convention/docs/Workshops/Kelley_Matthew.pdf
Hi,
ReplyDeleteDid anyone get to know about the latest treatment result of the two of 25yrs. old deaf people and a young deaf boy at South Korea? I heard that RNL was treating 3 deaf people at moment.
"RNL bio is also treating another boy(results soon!) born hoh or deaf and they are treating two adults with hearing loss and tinnitus."
ReplyDelete"Cord Blood Registry is starting enrollment this month for a clinical trial to attempt to reverse hearing loss in children..."
ReplyDeleteSOURCE: http://kyhandsandvoices.org/?p=129
I had an MRI done and everything in my brain is all normal. I spoke with an ENT doctor and he thinks my hearing impairment may be due to my mother getting antibiotics for when she got sick after being three months pregnant with me or when she went to the Everglades and got bit up by a bunch of misquotes. I just found out from my Grandmother that there have been people in my family in the past who have had hearing problems. But the ENT doctor I talked to doesn't think my hearing impairment is from family history or genes. But since my mother was adopted, we don't know anything about her side of the family, so I'm going to get genetic testing done around Thanksgiving to see if I have the gene for deafness.
ReplyDeleteI contacted a Keith Thomas from a company called "Beike". I received an attachment from them about a 19 year old boy they did last year. He was given 300 million umbilical cord stem cells and received improvements of up to 30 decibels in the 250 area of his left ear.
However, deafdude, I would like to try to get in contact with RLN bio and get 600 million of my adult stem cells... is that possible?
Again, I have moderate/severe hearing loss in my right and severe/profound in my left ear.
Thanks.
Can someone please tell me how to get in contact with Rnl bio?
ReplyDeletetry this...
ReplyDeleteJin Hong, PhD
RNL Life Science, Inc
301-661-2279
hongjh@rnl.co.kr
you could also contact Cryocord in Malasya.
L.Francis (see his posts in this blog) got his treatment there - 600m. of his own fat-derived stem cells following Chloe's protocol
the problem w/ Beike is they deliver such a small quantity of SC so results will be limited i'm afraid
Thank you! I just sent him an email and hope to hear from him soon!
ReplyDeleteYes, and that's why I wanted to try and get in contact with RNL bio.
Hope you find your pre-stem cell audiograms! We are looking forward to you getting at least 20db improvement with stem cells and being able to hear well in both ears with properly fitted and programmed HAs! What did you email him with and what did he say in the reply? If you have not gotten a reply yet, resend the email and I will also email him that you are interested. RNL bio is the top choice for me and many others.
ReplyDeleteJB FLA or anyone here. Have you received any stem cell treatment?? Has anyone tried and had a successfull treatment or not so successful. Is the Chinese company Don Margolis recomends Beike Bioteh???
ReplyDeleteLet us know so i can persue a company
Thanks
Harry
http://rnlbiofraud.weebly.com/ says it all really. Don't waste your money on them.
ReplyDeleteUS begins stem cell trial for hearing loss: http://www.dawn.com/2012/02/08/us-begins-stem-cell-trial-for-hearing-loss.html
ReplyDeleteFirst FDA-Approved Study of Stem Cells to Treat Hearing Loss Begins at Children's Memorial Hermann Hospital: http://www.marketwatch.com/story/first-fda-approved-study-of-stem-cells-to-treat-hearing-loss-begins-at-childrens-memorial-hermann-hospital-2012-01-12
ReplyDeleteWell, www.rnlbiofraud.com says it all really.
ReplyDeletesays nothing
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